Anxious and Tired

I've been up since 3AM (it's now 7AM) thanks #insomnia.  I'm leaving with my 3 year old and hubs shortly to drive to the University hospital about an hour and forty five minutes away (dreading being in a car that long with the hubs due to recent events).  My son has CKD (Chronic Kidney Disease) and this is his routine check up, ultrasound with the Urologist, blood and urine tests with the Nephrology doctors then the results.... Now let me reiterate, we are very blessed with his condition, he was 7 weeks old when we found out and he was life flighted to the University hospital while we drove like a bat out of hell to get there to meet him.  We almost lost him, but he was discharged 15 days later and the last 3 years have been filled with luck.  He has high blood pressure, takes sodium chloride for growth and iron daily, not bad for a CKD kid.  His test results continue to show improvement to which both doctors have now dubbed him Miracle "3 year old".  However - The #anxious part is never knowing whether or not that will change.  Initially they were sure that he would have a kidney transplant at one of two growth spurts, we bypassed 2, and the next will be puberty, but there has been no talk of that in recent visits.  I just pray today goes as well as past visits and that we continue to receive good news.  Needless to say #Clonazepam is once again my hero to help me through the day.